Contrast

I spent the last 3 days doing wedding-related festivities for my good friend, Erin. I was in the wedding party, so we spent lots of time celebrating and preparing and just having a great time. The ceremony was beautiful, the girls a lot of fun, and the weekend altogether enjoyable. Of course, in the back of my mind I kept thinking about Aleida's surgery coming up on Thursday. This wedding was always the event before the surgery, and it was a nice distraction. But now, I have no other place to focus my thoughts. My mind is spilling over with thoughts of the operation.



Truthfully, I think I would be less scared if I was about to have open-heart surgery. But I'm not and I can't take my daughter's place. I can't even explain to her what's going to happen. So, while I'm enjoying these few days with her, every one of her smiles has the sad outline of ignorance, and I feel guilty knowing more about her future than she does. Maybe it is better, her not knowing. There is anxiety in knowing and waiting and just thinking about something. And maybe that is where most of my fear is coming from- the thinking.



What am I most afraid of? It's hard to pinpoint because there are so many things. Here's a list of just a few.



1) The most obvious fear, that something will go wrong with the surgery. Let me just put it out there...that she won't make it. It's open heart surgery, afterall, and all surgeries have some inherant risks. I do not know what I would do if the worst happened. I do not know what I would do.



2) I'm afraid of seeing her taken away from me, knowing where she is headed. I don't like saying goodbye when I leave her with Dave to go to the grocery store. I know the hours she is in surgery will be agony.

3) I'm scared to see her directly after the surgery. She's going to be hooked up to machines and tubes. She'll be pale, drugged. I don't think I'll be able to hold her for several hours- maybe not even touch her. I'm not sure.



4) I'm afraid of the recovery. She's getting sturdier every day. She's working on standing up and crawling. We play airplane and she loves it. She loves baths and smiles through diaper changes. How fragile she's going to seem after such a major surgery. When will we feel comfortable handling her again? Is she going to be in pain? Will this delay her milestones like rolling over and crawling? When will we be back to normal, back on track again?

5) I'm a little afraid that they won't be able to fix her, that this will be a "wait and see" or "wait and try again" situation. I don't think this is likely, but this thought wormed its way into my brain a few days ago, and now it's leaving tracks up there, moving around and around in my head.

6) I'm worried about the scar. Honestly though, this may be the least of my worries. I'm not a vain person, and I can already tell that my daughter's lovely face, sweet temper and just that shine in her eyes will overshadow any cosmetic blemish. This scar will give her a story to tell, will make her aware of her own mortality, will help her feel lucky and blessed, will give her an appreciation for the human mind and modern science. She will hopefully embrace this as part of her life story, something that sets her apart from other girls. Still, this is a big procedure. I look at my daughter and she looks so PERFECT, that it hurts me to think about what they must do to her. But, she is not perfect. She has a whole in her heart, and the scar will be a visible reminder that she has been mended.

7) I think my biggest fear is that this will change her in some profound way. She is such an easy-going, adaptable, cheerful little creature. She is wholly unspoiled by any trauma or hardship. She is well loved and regularly cuddled. She's warm and full and comfortable most of the time. She smiles a lot. I am afraid that this surgery and the pain and confusion that accompanies it will change her. I don't want her to become fearful or suspicious or wary. She is too young to realize that life is not all warm milk and swaddled blankets. I don't want her to lose her innocence before she's 4 months old.